Huntingtons Disease Association Northern Ireland (HDANI)
Contact Information
- Address
- (for post only), 53 Andersonstown Road, Belfast, Co Antrim, BT11 9AG
- Contact Person
- Sorcha McGuinness, Chief Executive
- Telephone Number
- 079 8284 3907
- Email Address
- Web Address
- Visit Website
- Visit Facebook page
Additional Information
HDANI provides the following services to those affected in any way by Huntington’s Disease across Northern Ireland;
Family Support Workers: To provide emotional and practical support, advice, and information in any area that could be impacted by HD or by being a carer, from finances to employment, housing, accessing medical services, genetic testing, family planning, explaining HD to others.
Huntington’s Disease information: via our website, newsletter, e–zine and social media pages.
Annual Family Conference: learning and social events
Monthly facilitated support groups: in Belfast, Omagh, Newry & Maghera which are open to patients, those at risk of inheritance, family members, carers, partners and friends
An event-based facilitated service for children and young adults
Specialist training and events for health and social care professionals
Campaigning and lobbying for improved services
- Available to Age Groups
- All Ages
- Category of Services
-
- Health and Wellbeing
- Areas covered
-
- All of N Ireland
- Method of Access (Referral)
-
- GP
- Self
- Other
