Undiagnosed - Supports Families affected by a Syndrome Without a Name
Contact Information
- Address
- Genetic Alliance UK, SWAN UK, Creative Works, , 7 Blackhorse Lane, Co LONDON, E17 6DS
- Contact Person
- Telephone Number
- 0300 124 0441
- Email Address
- Web Address
- Visit Website
- Visit Facebook page
Additional Information
Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Without a diagnosis it can be difficult to access basic information and support. We have information leaflets which are available to download. We offer 24/7 information and support through our online forums for registered members.
Please see website for more details : www.undiagnosed.org.uk/
- Available to Age Groups
- All Ages
- Category of Services
-
- Disability - Learning Disability, Autism, ADHD
- Disability - Physical & Sensory
- Areas covered
-
- All of N Ireland
- Method of Access (Referral)
-
- Self
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